We made it through another day and we didn't have to visit the hospital. We did visit the doctor and we did talk to the lung dr twice. I decided this morning to call Karson's lung dr after he woke up wheezing and coughing. The wheezing began this morning. It always worries me when this happens.
I started this morning sleeping my half on Karson's floor and hearing him wheeze. I had been in his room since about 3ish when my shift on the floor began. Karson is sleeping better in his chair than his bed. So since I worry about him so much right now, we are taking turns on the floor. This way I can make sure his oxygen is on and his levels are not too low. He is on oxygen all the time right now.
After talking with his lung dr and being told I am doing exactly what they would be doing at the hospital, I felt some comfort. It is so much better to be at home with all my kids then worrying about who will be with the older kids while I am at the hospital. And since Kyle is so busy at work, it does not allow us to have him home. Such is life.
As the morning went on, I felt that Karson might be getting worse. I called Dr. Tucker's office and got him at 11:55 am. This is after I spent time at Target getting to scripts filled for him and dropping another $60 this month there. Oh well.
Dr. Tucker's office said his lungs sounded pretty good. Keep doing what I am doing and if at any time I feel uncomfortable then take him to the hospital. But the hospital would be doing exactly what I am doing unless he gets worse. So I headed home so he could be with his toys and I could be with my other kids.
I also took the afternoon to wash everything that Karson touches. All "softies" made it to the washer machine and the rest met Clorox. This made me feel somewhat better that I knew his toys and such were clean and didn't harbor any germs until he touched them.
The older kids have done so well with all of Karson's issues. Kam is dealing with missing his "bopie" aka pacifier when I make it stay in his room. Bailey plays and does what she can to entertain herself when I have to tend to Karson.
Overall the day has been busy and exhausting so much so that I could not find the energy to make it to the gym. The one free hour I had to myself I didn't want to go to the gym. I was tried and wanted to eat lunch at 2 pm and get a few things picked up.
Now it is time to get ready for another night on the floor and hope that Monday comes and Karson is better. This has been close to three weeks on the oxygen. Three long weeks!
Saturday, February 27, 2010
Bailey's Parent Teacher Conference
I could not be more proud of my daughter than I was yesterday at her parent teacher conference at Stanley British Primary School. She is an amazing child and loves to learn. These things I knew because I am her Mommy. However to hear it from her teachers who see her love of learning every day, who see her mind working all the time and see her growing is wonderful.
Bailey is doing great at reading. She is reading books on her own and now is bringing home books to read to us and her brothers. She is so proud when she reads to the boys. I love to see the smile on her face.
She is also doing really well in math. She did all of her numbers up to 101 and her writing is improving. Her spelling needs some help but she tries so hard. She wrote a great story about a princess and her shoes. She was so pleased we read it while we were at school.
I could not be more happy to have Bailey for my daughter and I feel so blessed that she does not have any delays since she was born premature. What a blessing!
Thursday, February 25, 2010
Disappointed
Disappointed is all I can say about my conversation with Karson's lung dr today. She had the results from his "room air challenges" from the day before yesterday and did not like what she saw. She also did not like the fact that Karson is now coughing a lot and that I told her his oxygen saturation level was below 90 when he was sleeping today and I put on his oxygen.
She would like his oxygen saturation levels to be around 93/94 when he is sleeping. She says Karson is not ready. However she did want me to lower his oxygen from 1/4 liter to 1/8. I guess that is progress. She is concerned that he will start wheezing which will most likely be a sign of another virus. If he starts to wheeze at all the oral steroids will begin again.
When I got off the phone I wanted to cry. Cry because my sweet boy hates the oxygen on his face, he doesn't sleep well, he gets so tried. Cry because I cannot make him better. Cry because I am the one who should protect him from pain and I cannot make this go away. However tears won't fix this. I hope time and prayer will. I hope that my sweet, little baby boy will grow out of this mess and be fine. I hope that I am doing all the right things for him to help him get well.
I try to stay optimistic but sometimes it is hard. It is hard to keeping wishing for a break only to be given a setback. However I remind myself that our situation and our lives could be worse and that I/we will make it through this like we have every other struggle.
I love my son! I want him better and I want him to know I am doing all I can to make him better.
She would like his oxygen saturation levels to be around 93/94 when he is sleeping. She says Karson is not ready. However she did want me to lower his oxygen from 1/4 liter to 1/8. I guess that is progress. She is concerned that he will start wheezing which will most likely be a sign of another virus. If he starts to wheeze at all the oral steroids will begin again.
When I got off the phone I wanted to cry. Cry because my sweet boy hates the oxygen on his face, he doesn't sleep well, he gets so tried. Cry because I cannot make him better. Cry because I am the one who should protect him from pain and I cannot make this go away. However tears won't fix this. I hope time and prayer will. I hope that my sweet, little baby boy will grow out of this mess and be fine. I hope that I am doing all the right things for him to help him get well.
I try to stay optimistic but sometimes it is hard. It is hard to keeping wishing for a break only to be given a setback. However I remind myself that our situation and our lives could be worse and that I/we will make it through this like we have every other struggle.
I love my son! I want him better and I want him to know I am doing all I can to make him better.
Kam and Kars
This morning after getting all the kiddos up and out the door by 8, I took the boys to the Cherry Creek Mall play area. That is after I dropped Sissy Bear aka Bailey off at school. When I tell Kam we are going to play he says "Mall?" It is too cute.
I like getting to the play area early because there are hardly any kids there and I don't have to worry about my kids being plowed down by a big kid. Plus Kam loves going and it gets us out of the house.
Kam loves the donuts from Starbucks so he had his breakfast in between running and jumping on the food. He tried to "surf" on the bacon several times and the boys rode the sausage train. Kars also liked getting out and looking around at the food. He did some time with the strawberry and the banana slices and then was ready for his nap.
I did feel a little out of place being the only Mommy there. The other kids that were at the play area were there with their Nannys. Needless to say, Nannys don't want to chit chat with Mommys. Oh well, Kam and I had a great time running around until about 10. This gave him an hour and a half of play time and then we were on the search from some socks for Bailey and Kam.
After getting socks for the kids and Kam some rain boots, I was on the hunt for some smaller hair clips that will actually keep my thick hair in place. We visited Claire's where I think I found some clips that will work. The funny part of that visit was the fact that Kam decided he needed a clip in his hair. So here is my blonde hair, blue eyed boy with a brown hair clip in. He thought he was cool.
Time to head home and put the boys down for a nap and wait for a call from Karson's lung dr. She should have the results from his room air challenges and I need to talk to her about the cough he has started. I really thought I would luck out this week and have one visit (Monday) to the dr and then two visits to the Target Pharmacy. Not so sure that will be the case. I think Kars will be at the dr tomorrow just to make sure he just has a cough. The cough means that we add his other inhaler 4 times a day.
Well it is noon and the boys are fast asleep. Kars after some rocking, Kam after his Diego video and some milk. I am ready for some lunch and a workout since I haven't been able to workout for two days. This makes me want to workout for 2 hours. But I know an hour is all I can get it.
Bailey has a play date after school and then will be home to see Grandma. Grandma watches the boys on Thursday afternoons. It is their time. I love that my Mom is so close that she has this bond with my kids. Some of my happiest memories growing up are visiting my grandparents. Going out to the land to see Grandma and Pa or going up a few streets to see Grandma Cleo and Grandpa Mac. I was so very blessed to have loving grandparents that always showed me love. How I miss them and how blessed I am that my Grandma is still her and is GG to my kids. Family is wonderful.
Daddy will be home from NYC tonight as well. Yeah for me. He can put the kiddos to bed and I can relax in a bubble bath with some wine. Sounds good but don't know if will really work out.
I like getting to the play area early because there are hardly any kids there and I don't have to worry about my kids being plowed down by a big kid. Plus Kam loves going and it gets us out of the house.
Kam loves the donuts from Starbucks so he had his breakfast in between running and jumping on the food. He tried to "surf" on the bacon several times and the boys rode the sausage train. Kars also liked getting out and looking around at the food. He did some time with the strawberry and the banana slices and then was ready for his nap.
I did feel a little out of place being the only Mommy there. The other kids that were at the play area were there with their Nannys. Needless to say, Nannys don't want to chit chat with Mommys. Oh well, Kam and I had a great time running around until about 10. This gave him an hour and a half of play time and then we were on the search from some socks for Bailey and Kam.
After getting socks for the kids and Kam some rain boots, I was on the hunt for some smaller hair clips that will actually keep my thick hair in place. We visited Claire's where I think I found some clips that will work. The funny part of that visit was the fact that Kam decided he needed a clip in his hair. So here is my blonde hair, blue eyed boy with a brown hair clip in. He thought he was cool.
Time to head home and put the boys down for a nap and wait for a call from Karson's lung dr. She should have the results from his room air challenges and I need to talk to her about the cough he has started. I really thought I would luck out this week and have one visit (Monday) to the dr and then two visits to the Target Pharmacy. Not so sure that will be the case. I think Kars will be at the dr tomorrow just to make sure he just has a cough. The cough means that we add his other inhaler 4 times a day.
Well it is noon and the boys are fast asleep. Kars after some rocking, Kam after his Diego video and some milk. I am ready for some lunch and a workout since I haven't been able to workout for two days. This makes me want to workout for 2 hours. But I know an hour is all I can get it.
Bailey has a play date after school and then will be home to see Grandma. Grandma watches the boys on Thursday afternoons. It is their time. I love that my Mom is so close that she has this bond with my kids. Some of my happiest memories growing up are visiting my grandparents. Going out to the land to see Grandma and Pa or going up a few streets to see Grandma Cleo and Grandpa Mac. I was so very blessed to have loving grandparents that always showed me love. How I miss them and how blessed I am that my Grandma is still her and is GG to my kids. Family is wonderful.
Daddy will be home from NYC tonight as well. Yeah for me. He can put the kiddos to bed and I can relax in a bubble bath with some wine. Sounds good but don't know if will really work out.
Wednesday, February 24, 2010
Kiddos
Yesterday Bailey went to the Nature and Science Museum with her class for a field trip. When I picked her up from school she had a look on her face like something was wrong. I asked if she was okay and she said yes but that she had to tell me about this field trip.
She goes on to tell me that they went to an area that talked about the sun and it had "a thing that showed you what you would look like when you are old and have been in the sun". She did not like this. She said she turned it up and she wanted to stop and then her friend's Mom turned it up until she was 80 years old. She was really upset. I asked her what she looked like and she said she had long hair and wrinkles all over her face. I asked her if she had a brown face and she said no. This child was traumatized! I don't know if she will forget this for a long time.
Kam still isn't 100% but is better. He is happier since he doesn't have to take the "yucky" medicine. He still is on meds but I guess it doesn't taste as bad as the last one. He is doing really well with telling me when he potties and when he needs to go. We aren't always at the bathroom fast enough but working on it. He also used the potty all day yesterday at school. He gets stamps for this!
I have also decided that I cannot have chocolate out in view. Kam loves it more than I think Bailey does. He wants it all the time. He asked for it for breakfast today and was crying when I wouldn't give him any. Then he gets his sweet face and says "1 more, please". Well it would be his first but he holds up 1 finger and says 1 more. He is too cute! But I didn't give in and when this batch of kisses is gone, there won't be any to replace them!
Karson did okay last night off his oxygen. I moved the sensor from his foot to his big toe. I didn't want it on his toe because last time the tape caused red marks on his toe but I had to do it to see how the readings were. Every time I checked he was at 89/90 so I didn't put the oxygen on him. I wanted Dr. G to get an idea of what he was doing without it. He also slept better for the most part. Other than being up from 1-2 am this morning. He only wanted 3 ounces so after that I told him it was bed time and I walked away. He finally went back to sleep @ 2. Then up at 5:30 and then up at 7. It was a better night than I have been having. Up a few times with him and then once with Kam.
Today is another busy day for us. I am not sure how people have 6/7/10 kids. I couldn't do it. Up at 6:30 with Kam, then 7 with Karson and Bailey. Treatments for Karson, clothes for Bailey and me, change a Diego for Kam and down the stairs for breakfast. Bailey eats but wants to watch TV, Kam wants chocolate and Karson is happy in his toy. Make a lunch, get some water for myself in the hopes of making it to the gym (didn't workout), Suay arrives @ 8, drop Bailey off @ 8:15, talk to my Mom, meeting @ 9 for Dolls for Daughters, volunteer @ 10:15 in the library at Stanley British Primary school and then home @ 12.
Boys are sleeping now.. Getting some computer work done. Wondering when the home health care company will show up with the right oxygen tank, when the maids will come - my house looks like a bomb went off, wishing I could catch a 30 minute nap but not today. Also wishing I could do an hour workout at the gym..
The boys will be up before I know it and it will be a race for the rest of the night. Kam to school, get Bailey from school and ready for dance. Bailey at dance @ 4:15, get Kam from school @ 4:30, feed him, back to dance, Kam dances for 30 minutes and then time for Bailey to be done and home @ 6:30.
Hope bed time comes at 8 tonight..
She goes on to tell me that they went to an area that talked about the sun and it had "a thing that showed you what you would look like when you are old and have been in the sun". She did not like this. She said she turned it up and she wanted to stop and then her friend's Mom turned it up until she was 80 years old. She was really upset. I asked her what she looked like and she said she had long hair and wrinkles all over her face. I asked her if she had a brown face and she said no. This child was traumatized! I don't know if she will forget this for a long time.
Kam still isn't 100% but is better. He is happier since he doesn't have to take the "yucky" medicine. He still is on meds but I guess it doesn't taste as bad as the last one. He is doing really well with telling me when he potties and when he needs to go. We aren't always at the bathroom fast enough but working on it. He also used the potty all day yesterday at school. He gets stamps for this!
I have also decided that I cannot have chocolate out in view. Kam loves it more than I think Bailey does. He wants it all the time. He asked for it for breakfast today and was crying when I wouldn't give him any. Then he gets his sweet face and says "1 more, please". Well it would be his first but he holds up 1 finger and says 1 more. He is too cute! But I didn't give in and when this batch of kisses is gone, there won't be any to replace them!
Karson did okay last night off his oxygen. I moved the sensor from his foot to his big toe. I didn't want it on his toe because last time the tape caused red marks on his toe but I had to do it to see how the readings were. Every time I checked he was at 89/90 so I didn't put the oxygen on him. I wanted Dr. G to get an idea of what he was doing without it. He also slept better for the most part. Other than being up from 1-2 am this morning. He only wanted 3 ounces so after that I told him it was bed time and I walked away. He finally went back to sleep @ 2. Then up at 5:30 and then up at 7. It was a better night than I have been having. Up a few times with him and then once with Kam.
Today is another busy day for us. I am not sure how people have 6/7/10 kids. I couldn't do it. Up at 6:30 with Kam, then 7 with Karson and Bailey. Treatments for Karson, clothes for Bailey and me, change a Diego for Kam and down the stairs for breakfast. Bailey eats but wants to watch TV, Kam wants chocolate and Karson is happy in his toy. Make a lunch, get some water for myself in the hopes of making it to the gym (didn't workout), Suay arrives @ 8, drop Bailey off @ 8:15, talk to my Mom, meeting @ 9 for Dolls for Daughters, volunteer @ 10:15 in the library at Stanley British Primary school and then home @ 12.
Boys are sleeping now.. Getting some computer work done. Wondering when the home health care company will show up with the right oxygen tank, when the maids will come - my house looks like a bomb went off, wishing I could catch a 30 minute nap but not today. Also wishing I could do an hour workout at the gym..
The boys will be up before I know it and it will be a race for the rest of the night. Kam to school, get Bailey from school and ready for dance. Bailey at dance @ 4:15, get Kam from school @ 4:30, feed him, back to dance, Kam dances for 30 minutes and then time for Bailey to be done and home @ 6:30.
Hope bed time comes at 8 tonight..
Tuesday, February 23, 2010
Failed...
Karson wasn't able to stay off the oxygen with his first room air challenge. I have to say this made me cry. I was so hoping that he would be done with the oxygen. It has been too long. I love this little man so much and it is so hard to see him upset with the oxygen but I don't have a choice as his mother I have to do what is best for him. And I guess right now, this nap is the oxygen. I can only hope and pray that tonight he does better. It will be a long night of me watching the monitor without his oxygen on but I hope it gives me some answers.
Tomorrow his dr will have the information from today and tonight and she can see what he has done. I wonder what she will say and if his meds will change again. We already do inhalers in the am and the pm - 2 of them. He also has Singular for his asthma. Can the kid catch a break? He also has thrush that I have to get a script from Target. I swear my kids alone must pay for at least on employee there a month.
Hope for better news later.
Tomorrow his dr will have the information from today and tonight and she can see what he has done. I wonder what she will say and if his meds will change again. We already do inhalers in the am and the pm - 2 of them. He also has Singular for his asthma. Can the kid catch a break? He also has thrush that I have to get a script from Target. I swear my kids alone must pay for at least on employee there a month.
Hope for better news later.
Off the Oxygen?
Karson has been on his oxygen now for 17 days. We have been doing oxygen at home for 14 days and I am so over it. I know Karson is too. He hates the tubes in his nose while he sleeps and always finds a way at night to get it out. We finally - after waiting over a week - have a pulse ox to read his oxygen saturation. He is able to have his "room air challenge". And maybe, just maybe all of my kids will sleep tonight!
Karson is such a great baby and is pretty happy considering he has been in and out of the hospital three times in his short life and on oxygen two of those three times. I hope we can make it to spring without another visit to Rose Medical Center.
Saturday, February 20, 2010
The Boys
I have to say I love having boys. My boys, Kamden who is 2 and Karson who is 6.5 months old, are so much fun. Both have been to the doctor more times that I'd like to count in their lives but both of them are so "chill". They are happy, fun and loving boys.
Kamden is on his third ear infection since January. He had tubes put in his ears January 13, 2009 and the one in his right ear lasted one year - the average. His ENT dr said he might need a new one in his ear but we want if this too shall pass. After spending a Friday night at the Urgent Care Clinic in Cherry Creek, I am not so sure this will pass. He was put on Augmentin this time and I hope that after ten days it doesn't come back. After waking up at 12:30 am with 103.8 fever, some juice and some Tylenol, the fever breaks and my boys is sweating. However he is asleep and that is good. He wakes up at 6:30 ready to go for the most part. Still not himself but doing okay. He does not want his round of meds at 7 am. But like always, he deals and then smiles.
Karson has been in the hospital three times already in his short life not counting his birth. All are related to colds that turn into lung issues for him. He now has infant asthma and is on all kinds of fun meds.. The child has his Xopenex inhaler twice a day when he is coughing which he is now. He has his Alvesco twice a day no matter what - this helps control his asthma. He is on a Xopenex neb treatment three times a day for wheezing and also has oxygen on when he sleeps. Oh and he has reflux so he takes prevacid every day. My poor child is always taking something. Most of the time with a smile on his face. He is such a sweet, happy boy. However he does not like the tubes on his face while he sleeps from his oxygen.
This weekend Bailey is skiing in Winter Park. I spoke with her and she is going to be on the Greens all day tomorrow. She has grown into such a great skier. I wish I could be there to see her but next time. I am home with the boys!
Tonight will be a Pizza Hut night, finish the book The Help and go to bed early!
Kamden is on his third ear infection since January. He had tubes put in his ears January 13, 2009 and the one in his right ear lasted one year - the average. His ENT dr said he might need a new one in his ear but we want if this too shall pass. After spending a Friday night at the Urgent Care Clinic in Cherry Creek, I am not so sure this will pass. He was put on Augmentin this time and I hope that after ten days it doesn't come back. After waking up at 12:30 am with 103.8 fever, some juice and some Tylenol, the fever breaks and my boys is sweating. However he is asleep and that is good. He wakes up at 6:30 ready to go for the most part. Still not himself but doing okay. He does not want his round of meds at 7 am. But like always, he deals and then smiles.
Karson has been in the hospital three times already in his short life not counting his birth. All are related to colds that turn into lung issues for him. He now has infant asthma and is on all kinds of fun meds.. The child has his Xopenex inhaler twice a day when he is coughing which he is now. He has his Alvesco twice a day no matter what - this helps control his asthma. He is on a Xopenex neb treatment three times a day for wheezing and also has oxygen on when he sleeps. Oh and he has reflux so he takes prevacid every day. My poor child is always taking something. Most of the time with a smile on his face. He is such a sweet, happy boy. However he does not like the tubes on his face while he sleeps from his oxygen.
This weekend Bailey is skiing in Winter Park. I spoke with her and she is going to be on the Greens all day tomorrow. She has grown into such a great skier. I wish I could be there to see her but next time. I am home with the boys!
Tonight will be a Pizza Hut night, finish the book The Help and go to bed early!
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