Last night Karson had a great night in terms of sleep. He slept from 9:30 pm until 6:15 am with one bottle. This is HUGE for us. Yes he did get up a few times just wanting his pacifier but nothing like he had been. I didn't know what to do with the sleep. I am so used to getting 30 minutes here, 2 hours there. Nothing like last night. I think my little guy was tried.
Today Karson had to be at PS/L at 11:30 am and could not have a bottle of milk after 7 this morning. We arrived to deal with confusion. Dr. Guarin wanted him to have a CT scan of his lungs before his other two procedures. Dr. Stathos' office had called this morning and told me to tell them we needed to have this done first so they knew. Well there was nothing on his chart or his admit papers. I had to sit on the phone with his office because they scheduled all of this and radiology at PS/L to get it figured out. Since Karson is 7 months old he had to have it done while he was under. Well yesterday when his office called to schedule the CT scan Dr. Stathos' office was told we didn't need to have an appointment. That was not the case.
It all was worked out and we were taken back to the day surgery rooms. It was there that we met Dr. Stathos for the first time. Karson's normal GI Dr was on vacation. Dr. Stathos was very nice and professional. He gave us a lot of information about what would be going on and that he would be looking at Karson from both ends just to make sure he didn't miss anything.
Dr. Guarin showed up and listened to Karson and talked to Kyle about what was going to be done. I already knew because I have spoken to her many times. Kyle had never met Dr. Guarin so I was glad they could meet.
At about 12:30 pm, after finding out that our anesthesiologist was a Gator, we went upstairs with Karson to the CT scan. I left the room before he was out because I was so nervous. I guess he did great. Just fell right asleep. After the CT scan they took him to the OR where Dr. Stathos did his upper endoscopy and "end endoscopy" (just my note on looking at the other end.) Followed by Dr. Grarin's bronch.
Dr. Stathos came out first with pictures of Karson's stomach, etc. He said he thought all areas looked good but that his pylorus, the opening from the stomach into the small intestine, is smaller than it should be. He said it was like 3 or 4 lead points rather than the size of a nickel. I told him that Karson had been seen when he was like 2.5 months old and they looked at this via ultrasound which showed he didn't have pyloric stenosis. Dr. Stathos took biopsies of three different areas while he was in there and will have the information back next week. Karson has is follow up on Thursday so we will know then what they find out and what needs to be done next.
Dr. Guarin came out when Dr. Stathos was finishing up. She said that his lungs looked pretty good. That she did not see any scaring which is good since he had RSV. She also said that his upper right air ways looked a little hazey so she took samples from that area as well. She also checked for all the viruses again since she was taking samples. What Dr. Guarin was looking for with her bronch was to see if Karson aspirates into his lungs when he refluxes. If he does then surgery will be required. If he doesn't then that is good. If there is fat in the samples she collected then that is how we know he aspirates into his lungs. Dr. Guarin should know on Friday what the results are and then we follow up with her next week.
This morning was very stressful because I was so worried about Karson and him being put under. He has been through so much in 7 months that I want him better. Unless you have had a child go under for something it is hard to describe how you feel until you know they are awake.
I hope all of this brings some answers for us and for Karson.
Wednesday, March 17, 2010
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I know how this feels, and how frustrating it can be. I'm sorry that Karson (and you) is going through this.
ReplyDeleteKeep us updated, can't wait till Wednesday!
Oh Jess - hang in there. Hopefully you have all of your answers next week and it's an easy fix. Thinking about you all! ~Holly
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