Just when I think things are back on the track they have been, Karson needs some help breathing during the day. His oxygen levels went down again while awake so he was back on the oxygen full time. Then he was fine and then he wasn't fine all while awake. Right now he has no chance in heck getting off the oxygen while he sleeps because the minute he is asleep it goes below 90 so quick.
I talked to Dr. Guarin and she is happy he isn't coughing or wheezing. However since he is working to breath some, he is back on neb treatments rather than the inhaler. Such is life. And I count my blessings because it could be worse but it could be better too.
I want the carefree days of taking the kids to play and not worrying about germs. I want the carefree days of not having to make sure I have oxygen on hand if I need it. I want the carefree days of no meds all the time, not visiting Target every other day to get meds for Karson. I don't want to visit the doctor's office at least once a week. I want my baby to be able to be a 7 month old baby and not worry about all this stuff. I want him to sleep through the night without being upset because something is up his nose. I don't think it is too much to ask.. I do count all my blessings but I'd like a break about now.
Now we wait until Wednesday and the procedures and hope for the best. Hope they can make him better but hope that price does not come with a surgery at the end of it.
I love this sweet boy Karson and I want him to have a normal day!
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