I really should wait until I go see Dr. Guarin in 45 minutes to post an update today but I am not sure I will get one done this afternoon.
Yesterday was a wonderful day and our family was able to get outside and get some sun. It was great to have Karson out of the house! I also thought his breathing was doing better and when he finally was settled for the night at 7:30ish, I had his oxygen levels turned down to between 1/4 and 1/8. Well that was shorted lived. I was even excited by the thought he might be able to come off of the oxygen. Well he couldn't stay any higher than 90 and the moment the tubes were out of his nose, he was below and the alarm was going off. I had to move him between 1/2 and a 1/4 so I could get some sleep. He did really well for the night. Wasn't up a lot to eat and slept until 6:30 am. I was very happy for all of us.
Today I met with Dr. Tucker, Karson's main doctor to see what his take was on Karson's medical stuff. I hadn't seen him since Karson's 6 month appointment and I wanted to just talk to him. He looked over all the tests that had been done on Karson and the fact he has been in the hospital - admitted - three times in his short life, plus visited the ER numerous other times. He felt like getting the second opinion was a good thing. He also said National Jewish or Children's - where you can get in the soonest. I have an appointment at Children's on April 26th - their soonest. But National Jewish I can get in this Wednesday @ 9am. So I am doing that. Now I have to get copies of all his reports and X-Rays before then. Oh well, I can fit that in someplace if it means getting Karson in to see a dr for a second opinion. Dr. Tucker said things most likely won't change but that having a new set of eyes never hurt anyone's care. So we shall see.
Dolls for Daughters has its first lane sponsor for our 2nd Annual Bowl-A-Thon. This is super exciting! Injury Finance is sponsoring a lane again this year. We hope to have 20 lanes sponsored and 20 teams participate. This is a fun event that I love doing and seeing families at. I hope our event on Friday is a success.
Kam is home on Spring Break this week while Bailey's is next week. Not the best with timing but oh well. Bailey and her Dad may go up skiing if some friends come into town but not us. With Karson's breathing issues the last place he needs to go is the mountains. I hope to take the kids to the zoo this week or the museum. I am thinking the park today after I get Bailey from school.
I also had the pleasure of reading another wonderful blog by a mother who lost a daughter. Her story reminds me of my story with Kenzi and learning about problems during an ultrasound. I can thank Shana for sharing this blog. Angie also has a book coming out that I hope to read. Check out her blog and her story if you get a chance. It made me cry. http://audreycaroline.blogspot.com/.
Hope it is a great day for all of you!
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