Doctor Updates for Karson

Karson has a pretty bad cough so I took him to Dr. Tucker's office today just to make sure his lungs were clear and they are. His oxygen when he is awake is good and about 90 while he sleeps. I just hope it stays there because he can stay off the oxygen.

I talked to Dr. Guarin today who talked to Dr. Barrios and Dr. Guarin wanted to send us to a surgeon to get an opinion on surgery for Karson's reflux because it goes into his lungs. The final reports from the bronch show that he has stomach contents in his lungs. Now I don't remember the technical term but this is the summary of it. =) However Dr. Barrios does not want to rush into anything considering Karson is having problems on the other end with his stomach not emptying fast enough and the pyloris issue. Dr. Gurain told me to call Dr. Barrios' office to get an upper GI done again because that is what he wants done before any other steps are taken. Dr. Guarin feels that Karson's asthma can never 100% be controlled with medicine if he aspirates into his lungs.

When I called Dr. Barrios' office today, I had to leave a message for the upper GI and then talk to his assistant - who is not that great with dealing with the information and helping parents- about getting in before the first week of May. He is on call this week and then booked until the first week of May. I told her that I want to see another doctor if he does not have an opening until the first week of May because I am not going to wait three weeks for him to be seen for his stomach emptying issues and the upper GI results. She old me that she has to talk to the PA tomorrow and then get back to me. However before she would even let me speak, she wanted to tell me that Karson had something done on Friday and she got the results. I told her to check the information again because he didn't have anything done on Friday. I also told her that I know Karson's lung dr will not be okay with waiting an additional three weeks for Dr. Barrios to talk to us about his thoughts on what to do with Karson.

With all this being said, Kyle and I are not interested in putting Karson through a surgery for his reflux. We are hoping that with time and Karson getting bigger that all of it will take care of itself.

His sweat test came back negative today for CF which is what we thought would happen. Great news.